Aw Becky, I've been following your misery for the past few months. I hate to hear you are dragging along. Hope you start feeling better soon. I can't say I know how you feel but I do empathize. Hang in there.
DH's Chrons disease has been in remission (I guess you call it that) or at least very low maint. for about 12 years. He had some surgery about two years ago and recovered nicely. We decided to go for that rather than being surprised by an emergency surgery in the future.
Things have been good then he started a WAY stressful job this spring and last week's colonoscopy showed lots of activity.
It is frustrating, sad and scary.
He started on a new steroid we'd never heard before, Endi-something (?? I think)and something new to replace the Asacol he's been taking for 10 years. 18 pills a day. Sheesh!
I feel helpless because I know how crummy he feels but he has a good attitude, tries to fake it well.
Hope these meds slow down whats working in there!
Kelly