Jenn, were you seeing a GI doctor or just the regular family physician? Regular primary care doctors are always so excited to talk to my husband and pick his brain about his illness and treatments because they just weren't trained like specialists, they just don't know that much. Also, there really is a lot more info every year, and a lot of support out there (sorry I led you astray with my bad spelling in the earlier post, didn't proof, like I said, listen to Becky! ) Check out the CCFA website it can lead you to support groups in your area. See a specialist Jenn. Becky is a pro, listen to Becky.

Becky, did it seem strange I didn't know anything about my husbands meds? Like I said he has been really healthy for a number of years to where I had kind of stuck my head in the ground and forgot day to day about what we were dealing with. My husband stays on top of his condition and care VERY well. But doesn't like to talk about it, doesn't seek thinks like support groups because he says he doesn't want to be reminded how sick he can get. It was really troubling to me at first and I worried a lot but we kind of have an agreement that he'll let me know when things are bad, thats how he deals with it best. And when things are really good I confess I slack off on keeping up. But I am an awesome low residue chef and keep the fridge stocked with homemade chicken broth for those liquid diet days! I'm the warm fuzzy side of the care!

Kelly