My dd was diagnosed at 2 months old. She finally out grew it when she turned 4. I was all prepared to tell the dr to do surgery when she was tested last. I also worried about the antibiotics she was taking. Had a friend tell me how it messed up her dd stomach before she had surgery at age 6. We always went and give a urine sample whenever her fever was over 100, unless we knew what the fever was caused by i.e the flu. Towards the end she learned to give a sample on the toilet. We would both cry when she had to be catherized. We also had a very bad experience when our local hosiptal did the vcug. Finally learned that going to a childrens hospital in Portland, Or was worth the 3 hr drive.
I hope this helps I know everyone I talked to had the surgery so we feel very lucky. There have been no lasting effects of the antibiotics.
Don't know if this is related but she was my only child that wet the bed until she was 5. She just finally outgrew this.

Good luck and let me know how your daughter is doing.

Michelle