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Good that you have a name but not so good as things are still
kinda unknown. How old is she again? Will she be continually on meds or just when is flares up (???)? Surgery is always scary with your kids. We went through that last year with DS4. A hernia surgery. Fixed the problem but there was always a chance that they could get in there and find it was worse. Ours was mild and I was a wreck! Worries a mommy to death, so you and your family on my prayer list!
Jana