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I Do Know What You're Talking About
They thought that our DD had that & she went through the tests as well. It turned out that she did not have it, but we were pretty worried because she only has one kidney. When she was born (in Russia), her right kidney was diagnosed with hydronephrosis. Since she was an abandoned child, they were not willing to try treating it, so they just took it out. Now, she has one kidney (her left) and we keep a very close watch on it with a pediatric nephrologist. It does have a cyst on it, but it appears that it may have been there since birth and is not growing. The ultrasounds show that it is getting smaller in relation to her kidney.
Nonetheless, my thoughts & prayers are with you that the meds will work and there will be no damage and no surgery.
Vonnie