Hi Angie et al,

I've had ME (Myalgic Encephalomyelitis, which is what true CFS is called outside the US and I think is a better name for it) for six years now, and the most debilitating form of it for the past two. There are several things that have helped me and although I still have a ways to go, I have made tremendous strides in the past few months. First I would reccomend reading Dr. Jacob Teitalbaum's book "From Fatigued to Fantastic!" This book is one of the most, if not THE most, respected book on the topic and he gives crystal clear suggestions for us. Until you get a hold of the book, you can begin to study his protocol on his website, endfatigue.com.
I would also suggest that you take a look at http://www.fibrocenters.com/. I have been visiting the center here in Seattle since September, and that is when the strides in my improvement began. They took the most comprehensive blood work up and evaluation of anyone, and their treatment protocol is logical, methodical, and so far, effective. It's also expensive, but what are you going to do? Continue to see doctors who don't know what they're doing and scratch their heads or misdiagnose and cause further damage? I decided there was no wiser way to spend my money than to do whatever it takes, and I'm glad I did it. I am happy to offer more suggestions, but I hope this is a start.

Best wishes.